Posts

Finding Balance in a Haystack

It's been a while since I posted here, mostly because I wasn't sure if there was anything to write about after my last appointment.  Things haven't changed too much, health-wise, but I did decide to stop taking my ovary pills. I'm doing it without my doctor's knowledge, so hopefully she's too busy to peruse the internet to see what her patients are doing. I will still continue to refill my prescription in case I ever need to go back on them again, but after looking over the list of side effects, I felt like what they were helping me with weren't as bad as what I have to deal with taking them. I hate the constant heart burn and the frequent trips to the bathroom. I reread my last blog post, and I was concerned about that back then. After reading the list of side effects, I realized that my medication was causing my loose stools and frequent nausea. Anxiety is another side effect, and while not drinking anymore helped significantly, every once in a while my he...

Nothing good in a good situation

I had my last appointment at the Mayo Clinic in Rochester, MN on August 23rd, 2024. The appointment consisted of an MRI and a visit with my nurse practitioner to go over the results. The MRI results weren't surprising. I have evidence of endometriosis, though the MRI couldn't tell us how much. I also have some scarring from my hysterectomy I had back in 2022. The cyst on my right ovary shrank and she was happy about that, because though she never outright told me, she was worried I had ovarian cancer. So.... because of the positive results of the colonoscopy I had in June and the MRI that didn't find anything serious, she said there wasn't anything else she could do and released me from care. I still have to touch base with her for refills on my creams (my lichen sclerosis will never go away) and my ovary pills, but I don't have another appointment scheduled.  At first I was happy because I was tired of driving to Rochester every three months and the hotel and food ...

Planned Spontaneity

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Probably one of the biggest things I miss is feeling good enough to just go do something. When I felt good, I was up for anything. Before I started writing, I was a runner, and I was running 5-10 miles four or five times a week. I was at the height of my health. I was eating well, had energy, slept well. I could get a million things done and still be up for doing something else. Case in point, this popped up on my Facebook timeline the other day, and I added my response to it. One of my biggest mistakes was stopping running when I started writing. Even though my job is flexible and if it's not busy (a rarity these days) I'm allowed to read or do something else, I stopped running completely and began writing every free second I had. I should never have done that, finding that elusive balance to keep both in my life instead. But I jumped into writing head first, and like a diver who mistakenly dives into a kiddie pool, I slammed my head on the floor of the pool. My health never q...

Garbage Doesn't Always Take Itself Out

If there's one thing I've learned over the past four and a half years, it's that no one will guard your mental health more than you. You know your own mind, you know your triggers. You know what you can tolerate and you know what will set you off. You know you can't get into a car with out feeling claustrophobic, you know that a doctor's appointment causes anxiety to the point you're crying in the waiting room. You know that if someone doesn't care how you feel, it can hurt more than the health issue you're dealing with.  I also know that protecting your mental health is hard. You're already going through a lot and you have to go through even more to keep what little positive mental health you have left.  Sometimes you have to be the garbageman. And yeah, sometimes their job sucks shit. Before the appointment at the Mayo Clinic in February of this year (2024) that changed my life, I had been friends with a co-worker for years. We met at work, got to ...

An Unsteady Balance

Not much has changed since I wrote last. Still shaky in the mornings, bloated, feeling it under my belly button and in my pelvis. I've been trying to treat the hemorrhoids they found during my colonoscopy, and I think when I had the procedure done, they scratched me up a little bit in there. My doctor at the Mayo Clinic in Rochester said to use A & D ointment, so I've been doing that. I think it's helped a little bit, but it kind of burns too, and though my lichen is doing okay, I still feel swollen at times. I really think if I can get my hemorrhoids under control, I can handle the rest better. I know why they bother me--this bloating makes me feel heavy around my clitoris, vagina, and my butt, and between the heaviness and the hemorrhoids, I have a sensation of having to have a bowel movement that comes and goes. It's not terrible, but in the mornings I usually have to go to the bathroom once or twice. I'm pretty regular now, and I'm "done" going...

Misplaced but not misguided

Today should be a good day. I'm not feeling too bad, the sun is shining, and it will be a slow day at work. But of course, that's not how mental health works, and I'm down, maybe not anxiety levels, but I just feel out of place today and it will be tough to explain why, mostly because there's no reason for me to feel like this.  I guess I could call it loneliness, but that doesn't make much sense because I like being alone. Maybe I'm feeling despondent because I'm still struggling with my physical issues, though I am making progress there. I know what's going on at least, which is more than what I had at the beginning of the year. It's difficult to wrap my head around the fact that I'll never feel normal again, always feeling the side effects of my hysterectomy, and the lichen sclerosis will never go away. I'm also not far from menopause, and with the stories I've heard about perimenopause, that could be effecting me too (I'll be 50 t...

Colonoscopy Recovery: It's not great and I'm tired

I had a followup appointment at the Mayo Clinic May 28th, and I came away with some good news. The ultrasound and her physical exam didn't find any damage from my hysterectomy in 2022. Because of the funny feeling I have in my belly, specifically under my belly button, I thought for sure something had gone wrong. but all my organs are where they are supposed to be. I could have some nerve damage at the incision site, but I need to message her and ask her for more information. I kind of spaced out when she explained because I was so relieved her exam and ultrasound didn't find anything serious. Still, I'd like to be sure that what I'm feeling maybe isn't exactly harmless, but at least there's an explanation. She was concerned about the bloating and puffiness so she recommended I have a colonoscopy to rule out any GI issues. My feelings about having a colonoscopy done were complicated because I was afraid of what they would find. I suppose most preventative tests ...